Communities

Muscular Dystrophy Association (MDA): “For strength, independence, and life…we believe in living unlimited.” Seattle MDA! Spokane MDA!

Muscular Dystrophy Association (MDA) Washington Facebook Page

Here and Now Project: “The Here and Now Project is a certified 501(c)3 nonprofit organization run by a team of dedicated volunteers. Our mission is to connect and empower the paralysis community in the Pacific Northwest. Through private support groups, community activities, and larger annual gatherings, we have built a fellowship of Survivors and Supporters who encourage and inspire each other to Do Life in the Here and Now.”

Northwest Women Wheelers Network: “Northwest Women Wheeler’s Network is a social and support group consisting of wheelchair using women from all “walks” of life. Ages range from 20s to 70s. Our group was formed after an SCI forum on women’s issues at the University of Washington Medical Center. Most of our members have spinal cord injuries, but we also have members with MS and other disabilities. Our members reside in the Greater Seattle/Tacoma area. We also have members in Oregon and one in California. Activities include an annual family picnic, holiday party, community action committee, and social and sporting events. We also have a members-only online forum and an email listserv. New members are carefully screened. Email addresses are never shared outside the group and no spam will be received. We welcome new members. If you’d like to join us, send a brief bio about yourself to “info at nwwwn.org””

United Spinal Association: “United Spinal Association is dedicated to enhancing the quality of life of people living with spinal cord injuries and disorders (SCI/D).”

United Cerebral Palsy: “To advance the independence, productivity and full citizenship of people with disabilities through an affiliate network. United Cerebral Palsy (UCP) educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities.”

Charcot Marie Tooth (CMT) Facebook Page: “The Seattle WA CMTA Branch is for those who have Charcot-Marie-Tooth disease and their loved ones. We welcome you to join this vibrant group of active and caring individuals in your area to share resources, ideas, CMT-related information, and personal experiences and to, ultimately, build life-long friendships and support. Meetings in Seattle, will be held 4 times a year and will focus on CMT education, awareness, research updates, fundraising initiatives, advocacy, and current events and will include guest speakers. We love newcomers and hope you will join us at our next meeting!”

Hereditary Spastic Paraplegia Support Group Facebook Page!

ALS Association Evergreen Chapter: “The ALS Association Evergreen Chapter offers comprehensive support for persons diagnosed with ALS, their families and caregivers cope with the day to day challenges of living with ALS by providing information, resources, and referrals to many sources.” 

Spina Bifida Advocates of Washington State: “To advocate for everyone in  the State of Washington affected by Spina Bifida  by providing support, events, outreach and public awareness.” And their Facebook page!

Spina Bifida Association: “The Spina Bifida Association (SBA) serves adults and children who live with the challenges of Spina Bifida. Since 1973, SBA has been the only national voluntary health agency solely dedicated to enhancing the lives of those with Spina Bifida and those whose lives are touched by this challenging birth defect. Its tools are education, advocacy, research, and support.”

People First of Washington: “…We are people first, our disabilities are secondary! …We’ve been a strong and growing state wide self-advocacy organization since 1981 when we were officially incorporated and received our 501-c-3 status.”

Seattle Adaptive Sports (SAS): “SAS is a not-for-profit, 501(c)(3) organization, recognized by the US Olympic/Paralympic Committee as a Paralympic Sports Club. SAS is dedicated to the promotion of the well-being of individuals with physical disabilities, by giving them the opportunity to participate and compete in athletic and recreational activities. Our participants benefit from the physical activity and socialization opportunities offered by the organization, improving self-esteem and physical well-being, as well as independence.

NMD United: “NMD United is a non-profit organization composed of adults living with neuromuscular disabilities. This peer-led organization will foster meaningful interactions and provide informational resources to increase self-direction while promoting independence.”

The Arc of Washington State: “The Arc of Washington State’s mission is to advocate for the rights and full participation of all people with intellectual and developmental disabilities.  Along with our network of members and chapters, we support and empower individuals and families; connect and inform individuals and families; improve support and service systems; influence public policy; increase public awareness; and inspire inclusive communities.” The Arc has county chapters all over the state of Washington.